Routine
Generally my treatment became pretty routine over these several days. I would get antibiotics 3 times a day from my IV but otherwise was unattached. I still took my barrage of other pills throughout the day, and got an Neutropenic shot every evening, and at midnight every night they took blood for labs.
I can shower, I can eat, and in general I felt good and on the mend.
Visits
I had some nice visits from my wife and dad, and even played some card games with my wife. Very fun.
Reacting to Platelets
One small hiccup happened over one of the nights. My blood count was still a little low on Saturday (or was it Sunday?) night, and they gave me more platelettes. For the first time I had a reaction to them. My head was swimming/throbbing, I had a slight fever, my lower back ached like crazy, and my hands tingled. They threw me on some meds to alleviate all of it, but boy did it feel bad for a bit.
By mid morning though all was well.
Losing my Room
It turned out that I might loose my great room. They had a Bone Marrow Transplant patient coming that needed it--and frankly--everything had been going so great for me I did not need to stay here. Was sad that I might have to leave it, but it was much more important to go to someone that needs it.
However--apparently that patient cancelled--not sure how one cancels such things, but I presume they went to a different hospital.
Just to be sure I could stay though I worked up a whole host of issues Tuesday.
Arggh
Sometime Tuesday AM things went a bit bad. Diarrhea was back, and then my labs showed my blood levels being so low they needed to give me more platelettes and transfusions.
When they came to give me my blood though, I had spiked a fever of 102. So they couldn't do any of it until they got the fever down. So then they had to work on that, and they started in on some antibiotics.
Well those started to cause a rash, so then they had to address that too.
I have basically spent most of Tuesday attached to all the monitors again, back in a hospital gown, lethargic and out of it, sleeping most of the time until now. And even then--I might just lie back down.
Pie
But I did have a delicious piece of pie that friend made, and that Jen brought me. And made so much, so much better...
Boy, you're really are pretty upbeat about it all. I mean I hope you don't get down in the dumps but I just wanted to support your healthy attitude about the experience. And still, if you get bored, I'll come visit you!
ReplyDeleteYour an inspiration Adrian!!!! Just read about all the crazy stuff that has happen these last few days. I'm sorry you have to go through this :( You need to let us know when you can have non family vistiors. Maybe i'll even bake you some cookies :) Stay positive and tell my Anna & Jen hello.
ReplyDeleteMike Balliro